National Thalassemia Welfare Society Organized the 25th International Thalassemia Day New Delhi, May 6, 2019: National Thalassemia Patients Welfare Society organized the “25th International Thalassemia Day” yesterday at Constitution Club, New Delhi. The event was inaugurated by the Chief Guest Mr. TD Dhariyal, Commissioner Disability Govt. of Delhi. He threw light on Thalassemia and RPWD Act 2016. He said that “Thalassemia, Sickle Cell Anemia and hemophilia have been included in the RPWD Act 2016. Now, Thalassemics comes under 5% reservations for higher education under disability. However they have no reservation in employment but now they cannot be refused or discriminated on health grounds. Thalassemics will be entitled to all the benefits under schemes made for disabled persons except reservations in jobs.”
Important Announcement – EasyShiksha has now started Online Internship Program “Ab India Sikhega Ghar Se”
Mrs. Vinita Srivastava National Senior consultant & co-ordinator Blood cell – NHM was Guest of honour for the event. Mrs. Vinita Srivastava apprised the audience that National guidelines on management and prevention of Haemolobinopathies (Thalassemia & Sickle Cell anaemia) were published in 2016, Policy draft is ready, may be notified any time after the elections. Funds have been released to provide adequate treatment to thalassemics in each state.
The event also saw the support of corporates such as TCS, Sodexo HCL, Soil, Walmart, Jaquar and RNA Technology & IP Attorneys who came together and talked about policies with regard to Thalassemia patients. The corporate reiterated that they are taking steps and changing policies recruiting Thalassemia patients.
While thanking Mrs. Vinita for taking initiatives to provide adequate treatment specially recently in Punjab & Karnataka, but unfortunately in most states still the condition is grim specially in Haryana, Delhi, UP & Bihar. Medicines availability is inadequate and irregular, said Dr. JS Arora, General Secretary, National Thalassemia Welfare Society
He further said that Guidelines to grade disability was notified in Jan 2018 were not rational, Criteria for grading disability in Thalassemia & Sickle cell Anaemia have been simplified by the experts but have not been notified. He requested Mrs. Vinita to get it notified at the earliest. Dr Arora also requested Mr TD Dhariyal commissioner disability to direct the disability boards to issue disability certificates within stipulated time.
Top Courses in Software Engineering
More Courses With Certification
Dr J.S Arora shared his concerns on how Delhi was first state where all the three chelating agents were always available, but we see only one or two chelators available. So, He requested Dr SK Arora, Additional Director Health services and Programme officer for Thalassemia to take effective steps because due to erratic supply of drugs, iron overload of patients have risen to toxic level
Mr Anurag Krishna CSR Lead – North TCS, Mr Sandeep Kumar Head HR Operations – Sodexo, Mr Rajiv Kumar HR Head HCL infotech Ltd, Mr AN Bhattacharya, Professor & Chair, Marketing & Social Innovation- SOIL, Ms Sunita Patnaik General Manager Walmart, Mr Kanwar Shamsher Relan, Head CSR- Jaquar Foundation and Ms Rachna Bakhru, Partner – RNA Technology & IP Attorneys were present. and More than 100 adult thalassemics interacted with the corporate and discussed the critical issues.
Dr Arora requested the companies to take special care to adjust their treatment schedule like blood transfusion dates, investigations, admissions etc. with their work schedule.
——————————————————————————————————————————————
Sign up / Register with EasyShiksha or Download the app and get free online education account. Get latest Jobs Notification & Current Affairs. You can access more than 50 free online courses, various computer and SSC Bank Railway test series and find your career options. You can Sign up with Facebook
Empower your team. Lead the industry
Get a subscription to a library of online courses and digital learning tools for your organization with EasyShiksha
Request NowQ. Are EasyShiksha's internships truly free?
Yes, all internships offered by EasyShiksha are completely free of charge.
Q. How can I apply for an internship with EasyShiksha?
You can apply by visiting our website, browsing available internships, and following the application instructions provided.
Q. What types of internships are available through EasyShiksha?
EasyShiksha offers a wide range of internships across technology, business, marketing, healthcare, and more. Opportunities are continuously updated.
Q. Will I receive a certificate upon completing an internship?
Yes, upon successful completion, you will receive a certificate recognizing your participation and achievements.
Q. Are EasyShiksha's internship certificates recognized by universities and employers?
Yes, the certificates are recognized by universities, colleges, and employers worldwide.
Q. Is the download of certificates free or paid?
Access to internships and courses is free, but there is a small fee to download certificates, covering administrative costs.
Q. When can I start the course?
You can choose any course and start immediately without delay.
Q. What are the course and session timings?
These are fully online courses. You can learn at any time and pace. We recommend following a routine, but it depends on your schedule.
Q. What will happen when my course is over?
After completion, you will have lifetime access to the course for future reference.
Q. Can I download the notes and study material?
Yes, you can access and download course materials and have lifetime access for future reference.
Q. What software/tools would be needed for the course?
All necessary software/tools will be shared during the training as needed.
Q. I’m unable to make a payment. What should I do?
Try using a different card or account. If the problem persists, email us at info@easyshiksha.com.
Q. Do I get the certificate in hard copy?
No, only a soft copy is provided, which can be downloaded and printed if required.
Q. The payment got deducted but shows “failed”. What to do?
Technical errors may cause this. The deducted amount will be returned to your account in 7-10 working days.
Q. Payment was successful but dashboard shows ‘Buy Now’?
Sometimes payment reflection is delayed. If it takes longer than 30 minutes, email info@easyshiksha.com with the payment screenshot.
Q. What is the refund policy?
If you face technical issues, you can request a refund. No refunds are issued once the certificate has been generated.
Q. Can I enroll in a single course?
Yes, select the course of interest, fill in the details, make payment, and start learning. You will also earn a certificate.
Q. My questions are not listed above. I need further help.
Contact us at info@easyshiksha.com for further assistance.
ALSO READ: NTPC-school-of-business-achieves-100-summer-placement
Get Course: Android-Apps-Development
